Milestones

The Chronic Pain Research Alliance (CPRA) is the country’s first and only research-led collaborative advocacy effort dedicated to changing the lives of those with Chronic Overlapping Pain Conditions (COPCs).  Chronic Pain Research Alliance Initiative,
The TMJ Association, Ltd.

 

Our Mission

With the ultimate goal of advancing timely diagnoses and effective evidence-based medical management for individuals affected by COPCs, the CPRA works with invested stakeholders:

  1. Promote high-quality research on chronic overlapping pain conditions
  2. Translate research findings into information for patients and educational training programs for clinicians
  3. Drive the development of safe and effective treatments for these conditions   

 

Our Vision for the Future            

With the advancement of CPRA programs, we envision a future where individuals with COPCs will receive a timely and accurate diagnosis, followed by high-quality, comprehensive medical care and safe and effective treatment that is informed by the latest and most innovative scientific evidence.

In the process, these future goals will also be attained:

  • Increased federal and private investment in COPCs research that is coordinated, standardized and collaborative
  • Informed and educated health care providers
  • Informed and empowered patients
  • Development of safe and effective therapies specific to COPCs
  • Maximized taxpayer dollars and decreased costs

 

CPRA’s Major Achievements & Milestones 

February 2018: CPRA secures grant to develop the first Continuing Medical Education program on COPCs, to be released in summer 2018

February 2018: CPRA works with advocacy organizations and members of Congress to encourage co-sponsorship of the Opioids and STOP Pain Initiative Act (S. 2260 & H.R. 4733) link: https://www.congress.gov/115/bills/s2260/BILLS-115s2260is.pdf 

February 2018: CPRA Director, Christin Veasley, serves on the Advisory Committee to the National Institutes of Health Director - Working Group on Ethical Considerations for Industry Partnership on Research to Help End the Opioid Crisis  

January 2018: CPRA Director, Christin Veasley, participates on planning committee for IMMPACT meeting: Research Design Considerations for Chronic Pain Clinical Trials Addressing Central Sensitization and Multiple Comorbidities  

January 2018: CPRA publishes first patient self-help guide on COPCs http://www.chronicpainresearch.org/public/CPRA_Patient_Guide.pdf

November 2017: CPRA Director, Christin Veasley, gives presentation on chronic pain and COPCs to select group of elite Hollywood screenwriters at the National Academy of Sciences' Science & Entertainment Exchange link: http://scienceandentertainmentexchange.org/ 

October 2017: CPRA Director, Christin Veasley, featured as a panelist at The Hill Event - America's Opioid Epidemic: Strategies for Prevention http://thehill.com/event/354536-americas-opioid-epidemic-strategies-for-prevention

October 2017: CPRA Director, Christin Veasley, gives presentation on chronic pain and COPCs at Blaustein Pain Grand Rounds, Johns Hopkins Hospital link: https://www.hopkinsmedicine.org/neurology_neurosurgery/education/conferences/blaustein/past_conferences.html 

September 2017: CPRA Director, Christin Veasley, speaks about the patient perspective on pain research at the National Academies of Sciences, Engineering and Medicine meeting -- Advancing Therapeutic Development for Pain and Opioid use Disorders through Public-Private Partnerships link: http://www.nationalacademies.org/hmd/Activities/Research/NeuroForum/2017-OCT-11.aspx

July 2017: CPRA Director, Christin Veasley, gives presentation on patient perspectives on conducting meaningful chronic pain research at the 3rd meeting hosted by the National Institutes of Health to develop a public-private partnership to develop new non-addictive pain medications and treatments for opioid use disorder link: https://www.nih.gov/research-training/medical-research-initiatives/opioid-crisis/public-private-partnership 

July 2017: CPRA Director, Christin Veasley, participates in IMMPACT Meeting: Recommendations for the Assessment of Pain Outcomes in Clinical Trials of Chronic Pelvic Pain and Irritable Bowel Syndrome link: http://www.immpact.org/meetings/Immpact20/participants20.html  

June 2017: CPRA Director, Christin Veasley, gives presentation on COPCs to group of patients, caregivers, advocates, pharmaceutical representatives, scientists and clinicians at U.S. Patient Day, hosted by Grunenthal

June 2017: National Institutes of Health releases the first Federal Pain Research Strategy - CPRA's Director, Christin Veasley, participates as member of the Steering Committee and Chronic Pain Research Workgroup link: https://iprcc.nih.gov/Federal-Pain-Research-Strategy/Overview? 

June 2017: CPRA co-facilitates effort of 70 advocacy organizations in writing to the White House Commission on Combatin Addiction and the Opioid Crisis, calling for the need of the federal government to advance pain research, treatment and surveillance http://consumerpainadvocacy.org/wp-content/uploads/2017/06/LetterCPATF-Commission_6-7-2017-FINAL.pdf 

April 2017: CPRA meets with members of Congress to discuss and prioritize FY 2017 federal research priorities for COPCs

February 2017: CPRA publishes educational patient brochure on COPCs http://www.chronicpainresearch.org/public/CPRA_Brochure_Web.pdf

November 2016: CPRA Director, Christin Veasley, gives presentation on Comparative Effectiveness Pain Research at the Patient Centered Outcomes Research Institute Annual Meeting

September 2016: CPRA Director, Christin Veasley, gives presentation on COPCs Treatment at The TMJ Association's 8th Scientific Meeting Link: http://www.tmj.org/site/page?pageId=387

September 2016: CPRA Director, Christin Veasley, presents at the National Academies of Sciences, Engineering and Medicine Committee on Pain Management and Regulatory Strategies to Address Prescription Opioid Abuse link: http://www.nationalacademies.org/hmd/Activities/PublicHealth/AddressPrescriptionOpioidAbuse/2016-SEP-22/Videos/Session%205/28-veasley-video.aspx 

July 2016: CPRA works collaboratively with the pain advocacy community and members of Congress to include Section 108 on pain research in the Comprehensive Addiction Recovery Act of 2016 https://www.congress.gov/114/plaws/publ198/PLAW-114publ198.pdf 

April 2016: CPRA meets with members of Congress to discuss and prioritize FY 2017 federal research priorities for COPCs

April 2016: CPRA co-facilitates effort of 72 advocacy organizations in writing to the U.S. Senate and House of Representatives, encouraging implementation of the National Pain Strategy http://consumerpainadvocacy.org/wp-content/uploads/2016/04/CPATF-HELPCommittee_NationalPainStrategyLetter_4-19-16.pdf 

March 2016: Department of Health and Human Services releases the National Pain Strategy - CPRA co-founders, Terrie Cowley and Christin Veasley, participate as members of the Oversight Panel link: https://iprcc.nih.gov/National-Pain-Strategy/Overview 

March 2016: CPRA Director, Christin Veasley, publishes op-ed in The Providence Journal, To Deal with Opioids, Deal with Pain, calling on legislators to increase vital funding for pain research, as well as the development of non-addictive pain medications http://www.providencejournal.com/opinion/20160312/christin-veasley-to-deal-with-opioids-deal-with-pain

February 2016: CPRA's co-founders, Christin Veasley and Terrie Cowley, publish an op-ed, The Painful Truth about Opioid Abuse, calling for legislators to accelerate critical chronic pain research Hill: http://thehill.com/blogs/congress-blog/healthcare/270336-painful-truth-about-opioid-abuse

January 2016: CPRA Director, Christin Veasley, participates as a patient stakeholder the Patient Centered Outcomes Research Institute Workshop: Prioritizing Comparative Effectiveness Research Questions for Treatment Options for Chronic Low Back Pain

May 2015: CPRA releases its second white paper, Impact of Chronic Overlapping Pain Conditions on Public Health and the Urgent Need for Safe and Effective Treatment

March 2015: CPRA meets with members of U.S. Congress to discuss and prioritize FY2016 federal research priorities for COPCs

January 2015: The NIH Office of Pain Policy develops a Working Group to guide the process of creating a Common Data Elements program and data-sharing repository for COPCs. CPRA Scientific Advisory Council member serves as co-chair and CPRA co-founders serve as members of the Working Group.

September 2014: With the goal of maximizing the federal research investment in COPCs, the NIH convenes the second federal meeting on COPCs, specifically to develop a NIH Common Data Elements program and federal data-sharing repository. This was called for in FY2015 U.S. Senate report language and included several CPRA Scientific Advisory Council members and CPRA co-founders.

September 2014: Co-sponsored by the NIH, The TMJ Association focuses its 7th Scientific Meeting on the genetic and epigenetic basis of COPCs

June 2014: NIH releases the first federal research Funding Opportunity Announcement on COPCs, co-sponsored by six NIH Institutes, Center and Offices

2013: CPRA obtains 2013 Senate Appropriations LHHS Report language for Chronic Overlapping Pain Conditions in the NIH Office of the Director and HHS Office of the Secretary

March 2013: NIH releases the Overlapping Conditions Workshop summary report. CPRA also provides a brief written summary of Overlapping Conditions Workshop for patients and the public.

August 2012: NIH holds the first federal workshop on COPCs and subsequently publishes the resultant research recommendations

August 2012: Senators Sheldon Whitehouse (D-RI), Tom Harkin (D-IA) and Bernie Sanders (I-VT) sent a letter to the Director of the National Institutes of Health (NIH), Dr. Francis Collins, to commend the upcoming NIH Workshop on Chronic Overlapping Conditions (including Temporomandibular Disorders) and to urge the NIH to "lay out clear and concrete recommendations for an aggressive, trans-NIH research agenda..." to accelerate scientific progress on these conditions.

February 2012: U.S. Senate holds the first hearing on chronic pain, Pain in America: Exploring Challenges to Relief, which includes the testimony of CPRA co-founder Christin Veasley and Scientific Advisory Council members Drs. William Maixner and Philip Pizzo  

September 2011: Co-sponsored by the NIH, The TMJ Association focuses its 6th Scientific Meeting on the mechanism, diagnosis and treatment of COPCs

Fall 2011: The NIH establishes a Trans-NIH Overlapping Chronic Pain Conditions Working Group, which includes 12 NIH Institutes/Centers and whose purpose is to assure coordination of research efforts across NIH on COPCs

June 2011: CPRA co-founded testifies before the Institute of Medicine (IOM) Committee on Advancing Pain Research and Education Committee and submits [CPRA’s 2010 white paper – add crosslink] for review. As a result, the historic IOM report, Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education and Research, includes vital information on COPCs.

May 2010: CPRA kicks off the Campaign to End Chronic Pain in Women with a standing room only event on Capitol Hill, releases its first white paper, Chronic Pain in Women: Neglect, Dismissal and Discrimination, and launches website featuring a newly developed video, Through the Maze. The campaign, which continues through 2012, raises awareness of chronic pain conditions that disproportionately impact women, as well as the neglect, dismissal and discrimination faced by women suffering from chronic pain.

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